The baby's condition was 'off the charts bad'. It was so extreme that the specialists stopped measuring and monitoring his fluid level because, at that point, it didn't really matter. The MRI's were sickening to look at.
“It was the most awful and difficult 24 hours of my life watching my son in so much pain, not being able to do anything to make it better and know that this could have been 100% avoidable."
The baby's condition was 'off the charts bad'. It was so extreme that the specialists stopped measuring and monitoring his fluid level because, at that point, it didn't really matter. The MRI's were sickening to look at.
"I couldn’t help the sobs. I got my boy and we moved to a secluded table and I held him as I explained what was happening... I held that 6-foot 4-inch, 175-pound boy. I rocked him as he asked if he would lose her...or both of them."
Her son was experiencing pain, fever, vomiting, diarrhea and sore muscles. Then he woke up with the worst rash she's ever seen and told her, "I’m Going to Die."
If a child is born with a hole in her heart, everyone in our society would respond the same way. We would all say, "Oh, that's so sad! Is there something we can do?" No one would ever wag his head at the child or the parents and say, "You must have done something wrong!"
He hasn’t taken me on any lavish trips or bought me expensive gifts for our Anniversary and the truth is these days we barely remember the day much less if it’s our anniversary. You see those aren’t ways a man treats you like a queen.