Every child deserves the right to live, play, learn and grow—especially at six years old. But after just that short bit of life here on earth, Elena Desserich and her family were given the news that she had a rare form of inoperable brain cancer. Of course, this news came as a shock to the entire family. See how they have shared their journey — and their daughter — with the world.
Doctors gave Elena Desserich — almost 6 years old — just four months to live.
Elena’s father, Keith, said that the family would not let her diagnosis hinder the small amount of time she had to live.
“We wanted to protect her so we never told her she might not make it,” he explains. “We didn’t want to focus on the cancer, we wanted to focus on being a family and doing all the things that Elena wanted to do.”
With a brave heart, and her innocently beautiful spirit, Elena battled diffuse intrinsic pontine gliomas (DIPG) for nine months before the disease took her little life.
But while Elena’s family was busy giving her the best life they could in the days leading up to her death, she was busy with a different project that her family knew nothing about.
At just six years old, Elena had the heart and understanding to leave her family something they’d desperately need later on.
She spent several months writing notes to her mom, dad and little sister, Grace, then hiding them all over her family’s home. Some had messages and some were drawings, but all of them were a piece of Elena.
