He is looked down on, talked about, told he is ‘scary,’ and yet he is the happiest and strongest kid I know. He doesn’t let the other people get him down.
He was formally diagnosed with Eosinophilic Esophagitis (EoE), which is a chronic, allergic inflammatory disease of the esophagus (the tube connecting the mouth to the stomach). It occurs when a type of white blood cell, the eosinophil, accumulates in the esophagus. The elevated number of eosinophils cause injury and inflammation to the esophagus. Having this diagnosis gives us a new direction and hope for a cure.
We want to spread awareness. No kid should have to live a life being uncomfortable in their own skin. No one should worry about being bullied or people not playing with them because of what they look like.”
**This story was submitted written by Sarah Kamekona. Follow her journey on Instagram, Facebook and Youtube.
