“Do you want us to do everything we can to save him,” the doctors asked her. “Or do you just want to let him live as long as he can on his own and then pass?”
Emily shared, “For us that wasn’t even a question. It was automatically, no we are going to do everything. God gave us this child. God will see us through this.”
“The video definitely showed how I felt because he’s a miracle baby in every sense of the word. A miracle baby,” Johnson said.
Due to the video’s success, the Johnsons have heard similar stories from others who have reached out to them, many of them sharing how hearing the Johnson’s story has helped them cope with their stories.
“We went from a full respirator with full feeds, had to have his eyes covered up all the time, had to be in an isolette (incubator) that was regulating his temperature for him to…a CPAP, from the CPAP to the nasal cannula, and now they are weaning him off of that,” Johnson explained. “And we’ve gone from having meds every three to six hours to he’s off all medications now.”
Johnson said that the video was too good not to share, but he had no idea it was going to received the attention it has.
“I thought I was just gonna post it and a couple of hundred people were gonna see it. And next thing I know, it’s at 100,000 views. I was like, ‘What is going on,’” he said.
In the three months he’s spent at the Baylor Scott & White Medical Center NICU in Temple, Texas, Remington has progressed “leaps and bound” and will soon join his his two older brothers at home.
