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What I Wish You Could See From a Mom of Children With Special Needs

I have a close friend who lives just down the street.

She sees more of our day to day stuff than any other person outside my husband and me.

She brings wine or food or both.

She doesn’t flinch when I have to leave her sitting on the couch for the 14th time to go help my son in the bathroom, or when the meltdown starts and all the chaos begins.

She asks, all the time, “What can I do to help?”

Last week, we were talking about my youngest son and all the things we are trying right now to help his health (physical and mental) stabilize.

She looked at me and said, “Shawna, your life has been hard every, single day for more than a year now. Every single day.

I started to cry—not because I was sad. I wasn’t sad.

I started to cry because I felt seen.

Yes, every single day of my life has been hard for more than a year now.

Yesterday, I went in for a parent conference with my son’s CBT therapist.

We sat down and she began to ask me questions about him at home, our family dynamic, the effects of all of this.

Honestly, I was a little bitter.

Having to explain, all the things, over and over to various professionals can be exhausting at best, and even more so, discouraging.

As I plowed through some of the most intimate and difficult experiences of my life and my son’s short life, I fought the urge to shut down.

She needs to know. It’s how she will help him. She needs to know.

When I was about through, she looked at me and said, “I’m glad you shared all this. I recognize that I am only seeing a point in time. You and your son have been dealing with this all along. And you deal with it every day outside these walls. This isn’t reality in here. What you’re doing is the reality. I need to know the real stuff so that I can best help him.

Again, I started to cry.

Again, I felt seen.

What I Wish You Could See

There is so much that no one really sees, not just in my family, but in all of ours.

My son’s therapist was 100 percent right. We only see a small point in time, a tiny little snapshot, compared to all of the life that’s being lived behind the scenes.

Unfortunately, that minute sliver of life is the one that everyone knows and responds to. It’s the one that informs opinions and judgments, treatment plans and prescriptions.  

And that tiny slice of all that we are? It is simply not enough.

Not enough to inform what can be life or death decisions. Not enough to really support and love a family in crisis. Not enough to really, really make a struggling momma feel seen.

Here is what I wish everyone knew—what I wish you could see.

I wish you could see my son with an animal—any animal. You’d be astounded at his heart and his gentleness.

Redheads Unveiled: 15 Shocking Secrets You Never Knew About the World’s Rarest Hair Color

Discover the fascinating world of redheads! Dive into the rare genetics, unique cultural stories, and surprising health facts that make redheads a true wonder of human diversity. Learn more about what sets them apart!

Kelsey Grammer’s Heartbreaking Path to Naming His Daughter ‘Faith’ Amid Loss

Kelsey Grammer opens up about the profound impact of faith in his life and the poignant moment in a church that led to naming his daughter Faith. Learn how personal losses and spiritual reflection shaped this deeply personal decision, revealing a touching story of resilience and hope.

NFL Star Derek Carr Acts on Faith, Saves Lives During Church Service

NFL quarterback Derek Carr stood up and took the microphone from the pastor in front of 300 people...