Cora’s story began in September of 2018 when we first discovered we were pregnant. On November 5th I had a blood test and we found out it was going to be a GIRL! We were so excited to be having our second daughter! On January 31st, 2019, our heart journey began when the radiologist at our anatomy scan said, ‘The heart appears to be abnormal.’ Those words changed our lives forever.
A few days later, we got the diagnosis at Swedish Hospital in Seattle. HLHS (half a heart) and a Diaphragmatic Hernia (a hole in the diaphragm). We were told she wouldn’t survive with these two severe defects. We were absolutely devastated. That day, after we received Cora’s diagnosis, but before we got the prognosis, we went to lunch. Over sandwiches at the Cheesecake factory, my husband Derek chose the name ‘Cora’ because it’s close to the word ‘corazon,’ which means heart in Spanish. When he suggested this, I cried and said, ‘It’s perfect.’
We decided to transfer our care to University of Washington and Seattle Children’s Hospital. The transfer took over 3 weeks to be approved by my health insurance, so at the end of February when we were finally able to be seen, they ruled out the diagnosis of the hernia. We were so happy! She had a chance! We felt so blessed and knew that this was an answered prayer! Over the remainder of my pregnancy, I had countless ultrasounds, fetal echo’s, and non-stress tests. We set my induction date for May 22nd when I would be 39 weeks.
The plan was to deliver Cora at the UW, then she would be transferred to Seattle Children’s Hospital within just a few hours. She would then have her first open heart surgery within a week of being born. But on the day of my induction, I got a phone call from my doctor letting me know they needed to delay my induction until the following week due to fungal contamination in the operating rooms at Seattle Children’s. We were pretty disappointed, especially me. I was so ready to meet my little girl. So we waited.
But two days later on May 24th, we got another phone call from my doctor. She told us that Seattle Children’s Hospital had closed all of it’s operating rooms and that we needed to transfer to OHSU in Portland, Oregon, the next day! We were so shocked, this was not what we had planned and we became very anxious. The next morning, I was transferred to OHSU in an ambulance while Derek drove down separately. We spent that weekend inpatient, meeting cardiologists and Cora’s surgical team. Late at night on Monday, May 27th, my labor was induced. I started Pitocin at 12:45 a.m., then my water was broken a couple of hours later. At 5:30.a.m., the contractions were more than I could bear and I was sure I still had several hours left to go. So I asked for the epidural.
The anesthesiologist began his work and the epidural was finally placed, but he wasn’t able to place a spinal. So I had to wait for the meds to kick in. As soon as the meds started flowing, I started throwing up. My doctor decided to check my progress and I was still just 7cm. At that point it was 7 a.m. and time for a shift change. She decided since I still had some more progressing to do, she left. As soon as she left I got sick again, while at the same time having a long and excruciating contraction. My nurse asked me, ‘Are…you feeling like you’re ready to push…?’ I answered, ‘Ummm…I think so?’ So just six minutes after my doctor checked and I was at 7cm, my nurse decided to check me again just to see if I wasn’t fully dilated. Then she said, ‘Yep! You’re fully dilated!’ and ran to the door to yell for my doctor.
