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Doctors Urged Her to Terminate Her Baby With Down Syndrome. She Chose to Fight For Her Child’s Life

Unfortunately, the Blosfields were not able to ride that high for long. Soon, more devastating news followed. Ethan had a heart defect, and it was a bad one.

“They told us that his heart defect was so severe that they expected that he would be a fetal demise case so that his body would give out in the womb and he wouldn’t make it to birth,” Allison said. “They told us that if he did make it to birth, survived birth, that it was likely he wouldn’t live more than 24 hours.”

Again, the Blosfields were offered an abortion to terminate the pregnancy, this time at 24 weeks. But their answer was the same.

“At that point, I was annoyed,” Allison recalled. “I was like, ‘No, we’re good. I’m scared right now, but we’re keeping our baby.’”  It was time to come up with a game plan for the rest of the pregnancy and the hopeful birth of their baby boy.

The medical team strategized that if Ethan could make it to 36 weeks, he could have surgery. Week after week, knowing their son could die at any moment, the Blosfields held on to hope. But, Allison went into labor at 35 weeks. Ethan was born on December 13, 2022. Too weak for surgery, he spent his days and nights in the NICU with his parents by his side.

Finally, Ethan was able to receive open heart surgery, but sadly, it wasn’t enough. He and his parents fought and fought, but it soon became clear that Ethan would not survive. Allison describes how hard it was to accept this, saying, “We had been told many times that he was getting worse and that he likely wasn’t going to make it,” she said. “But in our mind, we had heard that so many times before, and he had come so far. We had gotten days away from going home once. So in our minds, we were like, ‘We’re going to get back there. We are absolutely going to get back there.’ And we had gotten ourselves in just such a mode of just fight, fight, fight, fight, fight. Every day, there was a new fire. Every day, there was a new battle to go through.”

One day, she and Eric came to the realization at the exact same time that it was time to let their beautiful baby boy go.

The hospital staff made it special for them, allowing the family to spend time together on the roof of the hospital. It was Ethan’s first time going outside. They turned a bench to face the beautiful Mt. Ranier, and the family settled in to spend some precious moments together.

“And it was in my arms that they took him off of his life support,” Allison remembers through a rush of emotion. “We got to have music playing. We got to sit, and hold him, and tell him how thankful we were for him. We got to sit and just thank him for being our son, for fighting as hard as he did to stay with us. And we told him that it was okay to go, and it was okay to not fight anymore.”

Ethan passed away on June 30, 2023.

Despite losing their child, Allison and Eric are so happy they got to meet him in this life, that they gave him a chance to fight for his life instead of ending the pregnancy. Allison describes Ethan’s funeral as a celebration of his short life.

“My son lived for 199 days, and we wanted to celebrate that. He pushed past more stuff than doctors ever thought that he would, and he broke barriers and proved that miracles happen. And I wanted to celebrate that, and so did everybody else.”

Throughout the whole ordeal, Allison used social media to tell Ethan’s story, and that continues as she uses it to help her heal. She has no regrets about their choices, and she wants everyone to know that.

“Being able to acknowledge that situation that we were in, it’s temporary. Your situation is temporary. It’s not going to last forever,” she says encouragingly. “And focusing on that and focusing on moving forward. I don’t think people move on from losing a child, but I think that you can move forward, and we’re moving forward.”

Jenny Rapson
Jenny Rapsonhttp://www.foreverymom.com
Jenny Rapson is a wife and mom of three from Ohio and the editor of For Every Mom. You can also find her alternately griping and gushing about her kids at her own blog, Mommin' It Up. You can email her at jrapson@outreach.com, or follow her on Twitter.

WATCH: Huge Flash Mob Erupts into Worship in Chick-fil-A With the Song “Every Praise”

A Christian flash mob decided to bring church to Chick-fil-A in a whole NEW way by bursting out into praise with a powerful rendition of the worship song "Every Praise."

7 Key Facts About Tony Perkins and His Role in Christian Conservative Politics

Learn key facts about Tony Perkins, a prominent leader in Christian conservative politics, and his influential role in shaping religious and political discourse.

Bride Does “Sexy” Boudoir Photo Shoot for Groom. The Unexpected Results Are Hysterical.

“You know a marriage is going to last forever when you start out laughing." See how bride Nicole Stein captured boudoir photos for the groom just before their wedding.