"There will always be the older white woman in Walmart who stared at us with sheer disgust, or the African-American mother who looked at us and just shook her head.”
The baby's condition was "off the charts bad". It was so extreme, that the specialists stopped measuring and monitoring his brain's fluid level because, at that point, it didn't really matter.
The baby's condition was 'off the charts bad'. It was so extreme that the specialists stopped measuring and monitoring his fluid level because, at that point, it didn't really matter. The MRI's were sickening to look at.
“It was the most awful and difficult 24 hours of my life watching my son in so much pain, not being able to do anything to make it better and know that this could have been 100% avoidable."
It’s not that I necessary look old. I don’t even recognize myself anymore. I look tired. I look rushed. I look like I’ve let myself go. Mom tells the realities of caring for others with special needs.
