"I felt the tug on my sleeve and looked down to find him standing motionless. His mouth was moving but I couldn’t make out his words. His quiet body in the noisy room caught me off guard. I bent down to find his voice."
"Tears-pouring-down-my-face, couldn't-talk-couldn't-breathe kind of laughing. Screaming laughing. So hard that I was sobbing because I couldn't get it together."
"I don’t know who this lady is... she waved at him and he made his way up to her. I thought their interaction would be the same as last time but I was wrong. "
"I felt the tug on my sleeve and looked down to find him standing motionless. His mouth was moving but I couldn’t make out his words. His quiet body in the noisy room caught me off guard. I bent down to find his voice."
"It passed without me realizing it, as it usually does. It’s been almost exactly 4 years since we went to that doctor's appointment and saw nothing instead of something... The mistake I’ve made is in thinking that I’ve finished grieving, or that I will one day."
"My heart broke! No child should feel the emotions Charlie is feeling. No Child! No parent should watch their child slowly go. Having to watch them deteriorate in this way is the most painful thing anyone will ever feel."
"This question always make me pause. This well-meaning stranger, often a parent and just looking to swap stories, doesn’t know what they are asking. How could they?"
