The next day was one of the happiest days! Chanel and I got to see her eyes open for the FIRST time since before her first surgery! Chanel said, ‘Baby Cora…Eyes…Open.’ It was so exciting! Chanel kept on repeating that phrase. She loved her baby sister and she loved seeing her eyes open.
Two days after her second surgery, Cora was taken off ECMO! We were so excited! She was doing so well, her swelling had gone down because the fluid was being pulled off through the ECMO circuit, we were so happy! She even got a feeding tube the next day! Derek was FINALLY able to see her with her eyes open, and she got to take a binky! Things were going so well! This was the best and longest stretch of progress we had with her. This long stretch lasted for almost 6 days!
Cora still had more fluid to lose and her kidneys weren’t working, so she had a procedure done to connect her to Hemodialysis to help her body get rid of the fluid. When we got the phone call that it was complete and it was successful, we got in the car to make the trip to go see her.
But just when we were only a couple of blocks away from the Ronald McDonald House, we got another call. The worst phone call. The nurse said that Cora was not doing okay, she was getting CPR and we needed to come to the hospital. This was the scariest night of our lives. When we walked in, Cora’s room was surrounded by doctors and nurses. They were running around, on the phones calling the lab, trying to get blood products to her room, trying to get the ECMO machine ready for her. Ashok was vigorously doing compressions on her tiny, blue body. We were so afraid that this was the end. After 90 minutes of CPR, they were finally ready to connect her to the ECMO circuit again. When we were finally able to come see her, it was 1:30 a.m. on Father’s Day. Cora was more swollen than we had ever seen her before.
After having CPR for 90 minutes, a head ultrasound showed a few small spots on Cora’s brain that were damaged. The doctors were hopeful that the damage wasn’t significant, and it didn’t seem to be because Cora was still so awake and wiggly. But they hooked her up to an EEG to monitor her brain activity for a day. The next morning, they were able to take off the EEG because everything looked normal! Over the next couple of days, she got a new breathing tube because the one she had was beginning to leak, she got a new IV, and she had a Bronchoscopy to clear out her lungs. June 20th was a special day. Cora looked her best since the first time she went to surgery. She just looked so beautiful and comfortable.
Although Cora had seemingly made a lot of progress, her team was still concerned about her being on ECMO. Her heart was strong and ready to beat without any support, but her lungs still needed the help. So they decided they wanted to move her ECMO cannulas from her chest to her neck. They also wanted to put her on Peritoneal Dialysis again to help her kidneys. If everything went well, they would also close her chest. We were so happy! So on Friday June 21st, Cora went to the OR for her third time.
