The baby's condition was 'off the charts bad'. It was so extreme that the specialists stopped measuring and monitoring his fluid level because, at that point, it didn't really matter. The MRI's were sickening to look at.
“It was the most awful and difficult 24 hours of my life watching my son in so much pain, not being able to do anything to make it better and know that this could have been 100% avoidable."
It’s not that I necessary look old. I don’t even recognize myself anymore. I look tired. I look rushed. I look like I’ve let myself go. Mom tells the realities of caring for others with special needs.
