Ten months after their son Charlie Gard was born in the terminal stages of a disease called mitochondrial DNA depletion syndrome, parents Connie and Chris are doing everything in their power to give their son a fair chance at life.
Connie Yates
The baby boy is believed to be one of only 16 people to ever have the condition—making treatment and resources nearly impossible.
The couple from Bedfont, west London, found a specialist in the United States who offers an experimental therapy called nucleoside, but after raising more than $1.6 million dollars to transport their son for the treatment, doctors refused to let him go.
Instead, they suggested Charlie be taken off life support and allowed to “die with dignity.”
Upon having their parental rights stripped from them by doctors, Connie and Chris have embarked on a journey of justice for their son—taking their appeal all the way to the European Court of Human Rights.
Connie Yates
In an April 11 court hearing, judges ruled in favor of the doctors, allowing Charlie’s life support machine to be turned off as medical professionals see fit.